Thursday, March 18, 2010

Second Brain Surgery Scheduled

To our Beloved Friends and Family,

Well, I am not sure where to start. I think I am in a bit of shock, so heartbroken, and every other emotion that you feel as a parent when one of your children is ill. The first thought that always comes to mind is take me, but please let my precious children be healthy. Unfortunately that is not an option given to us as parents. I cant put a band aid on it, and I really have no control other than giving all the comfort, love, and support that one has to give.

So today Caitlyn's MRI showed very bad news for her. A cyst is taking over the left side of her brain. This "balloon" of fluid is about the size of a lemon, maybe even a bit bigger. Truly unbelievable that such a small place in her brain can hold such a large amount of blocked fluid. This of course explains the large amount of headaches, exhaustion, loss of concentration, and tummy aches that she has been feeling again. Her Dr. was truly shocked that she is even walking or talking at this point. That's our Caitlyn though, tough as nails and surrounded by angels even in the worst case scenarios. In addition to that the remaining tumor has reattached itself to a new blood supply which is feeding it to grow again. The tumor is in what they call a "no" zone. Very deep into a part of the brain they do not like to enter, that is why he left it the first time (trying to save the vision in her left eye) and we were going to try radiation. Now we have no other options but to go in and fix both problems with open brain surgery just like we did last time but this one even a bit more intense. So with that being said Caitlyn will under go another very risky open brain surgery next Thursday. She of course was devastated to hear the outcome as we all were. I of course said, "Caitlyn we will conquer this! Together as a family, we can get through anything!" We can not loose our hope for round 2 but definitely searching for new strength. We are terrified again even more so than before, and having major flashbacks of how awful recovery was last time for her. Her Dr. always tells us, let her have a blast the week before surgery. If something happens, you know what to do! So that is what we do to try and cope. Every day becomes a party and we cherish every moment. Please keep Caitlyn in your prayers and positive thoughts. We know you all always have, and we thank you for your continues support since July 2009.

Love to you all,

Stephanie and the entire Neely Bunch

13 comments:

  1. We are here for all of you.... Prayers always and forever <3 Caitlyn is amazing because she is of an amazing family.. Please let all us help to support and give the strength in any way possible.... All our love and prayers xoxoxo...
    A friend of mine wrote to me yesterday and his words really helped ".this can be another miracle surgery.........just have to pray with hope and courage. As a friend once said to me.......you have to just put them in the palm of God and pray for God's will be done..........that is so hard to just let go and let God's love surround Caitlyn..........so often I bet Caitlyn is stronger than everyone else........"

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  2. Wow, I cant imagine how hard this is for you as a mother. It breaks my heart to think of it. God hears our prayers and he still heals today, even as Jesus did - even from cancer. He loves our children more than we could imagine loving them. may He be near to all of you through this time.

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  3. Hi
    I came across your blog through LilBlue Boo. I am so sorry to hear this. I am a believer and I will keep Caitlyn and the rest of your family in my prayers. May God bring healing to your family.

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  4. I am sorry to hear about your beautiful daughter and her predicament. I will keep you, her, and your family in my thoughts and prayers. God Bless.

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  5. Hi,
    I got the link to your blog through LilBlueBoo. Yesterday I blogged about an essential amino acid Lysine that is known to stop and reverse cancer cell growth! Check it out here:
    http://visionsinparadise.blogspot.com/2010/03/avocado-speaks.html
    I pray for your daughter.

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  6. Hi,
    My kids go to Ronal Reagan so we have been hearing about the progress through that, but tonight my friend Heather posted the link to your blog on her FB page. I am so very sorry that she has to have another surgery but I will be praying everyday for her and for your family! I will also let our church know so they can add her to the prayer lists. My heart goes out to your family.
    God Bless,
    Ashley Robertson

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  7. This to Caitlyn,
    I hope U wins a track medel on Saturday and i hope i win one too. You are my best PEEP you know. That is a new word of mine meaning friend. You will be my Best PEEP Forever... I can not wait until you have no more surgeries, I hate them. I wish I could come tell you jokes when you get shots.. I will bring you cpk if you want and your moma will let me :)
    Oh g2g to school see u there. CYA
    friends till the end (like 100 years)
    love'
    Tigger

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  8. Stephanie and Family,
    May God surround you all with angels of courage and healing. May you know His peace as He carries you all on another miracle journey. God guide the hands of the surgeons and bring miracle healing to Caitlyn again.
    Love, Hugs, and Prayers,
    Ginny

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  9. Stephanie, Caitlyn, and family,

    The Friends of Jaclyn community is keeping you in our thoughts and prayers. I hope that this tumor is removed successfully and Caitlyn maintains her amazing strength, courage, and positive outlook. You are such an inspiration!

    You have tons of prayers coming from DC and all over the country.

    Sending hugs and love,
    Sarah

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  10. We want you to know that our thoughts and prayers are with you. We love your family. Caitlyn is such a special girl. We know that our Heavenly Father will watch over her tomorrow. Put your trust in Him, and He will never leave you. We are all fasting tomorrow for your family. You are all such an inspiration to us. Please give Caitlyn a hug from Elly and all of us. We love you guys.

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  11. Caitlyn and Family,
    Stay strong! Tomorrow is a big day but with hope and faith, you all will overcome! Your in our prayers. Caitlyn, you rock baby girl!! Your angels are with you :) Love to you all!

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  12. please know that you are in our thoughts and we are sending lots of healing and love your way...

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  13. Praying for all of you today as your little sweet heart heads into surgery!

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